Chronic Sorrow in parenting a child with a disability

‘Chronic sorrow’ is the term used to describe the chronic hidden sorrow that parents of a child with a disability live with on a day-to-day basis. Simon Olshansky, a counselor to parents of handicapped children, coined the term in 1962.[1] Parents often do not recognize this sorrow, nor do their friends, relatives, or the professionals supporting them. Chronic sorrow does […]

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Meditation camp for stress relief for 22q.11 parents

Camps are good for children, but parents also need camp. Parents of children with 22q.11 Deletion need…meditation camp to help deal with the stresses in raising their child. Mike, my son is grown now, but I remember the relentless stress. Chronic stress is dangerous and can result in a multitude of health problems. There were long hospital days, unexplained fevers, difficulty breathing, failure to thrive, heart problems, seizures, […]

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Yearning for Normal: time to make some changes.

“It was a time when the unthinkable became the thinkable and the impossible really happened.” ― Arundhati Roy, The God of Small Things Yearning for Normal was the title of my first book, the story of raising a son with 22q.11 Deletion Syndrome.  An invisible missing fragment of DNA disrupted every aspect of our son’s life physically, mentally, and spiritually.  It also […]

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Hanging up my stethoscope

Hanging up my stethoscope feels like losing a limb. I’ve been a nurse, a nurse practitioner, and a nursing instructor for all of my adult life. Over the years I have listened to thousands of patient’s stories, listened to their hearts, their blood vessels, their bowels, and their lungs. I have touched patients, held their hands, hugged them, made them […]

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Prepare to meet your maker

Crisis This Covid-19 crisis moment will go down in history books. Life on this earth is changing before our eyes. An invisible virus brought our world to a standstill. We hide from the virus as it hides from us. In Chinese, the word for crisis consists of 2 characters.  The first character means danger, the second character means opportunity. This time […]

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