Yearning for Normal: time to make some changes.

“It was a time when the unthinkable became the thinkable and the impossible really happened.” ― Arundhati Roy, The God of Small Things Yearning for Normal was the title of my first book, the story of raising a son with 22q.11 Deletion Syndrome.  An invisible missing fragment of DNA disrupted every aspect of our son’s life physically, mentally, and spiritually.  It also […]

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Gratitude

  “Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. It turns problems into gifts, failures into successes, the unexpected into perfect timing, and mistakes […]

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Chronic Sorrow in parenting a child with a disability

‘Chronic sorrow’ is the term used to describe the chronic hidden sorrow that parents of a child with a disability live with on a day-to-day basis. Simon Olshansky, a counselor to parents of handicapped children, coined the term in 1962.[1] Parents often do not recognize this sorrow, nor do their friends, relatives, or the professionals supporting them. Chronic sorrow does […]

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