Yearning for Normal: time to make some changes.

“It was a time when the unthinkable became the thinkable and the impossible really happened.” ― Arundhati Roy, The God of Small Things Yearning for Normal was the title of my first book, the story of raising a son with 22q.11 Deletion Syndrome.  An invisible missing fragment of DNA disrupted every aspect of our son’s life physically, mentally, and spiritually.  It also […]

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Election 2016 and your childrens’ future

Sometimes parents of disabled children are too busy caring for their children to pay attention to politics.  However, politics matters for the future well-being of our children.     Will the person we elect protect the rights of the weakest and most vulnerable among us? Are the needs of the disabled for medical care, food, and housing part of the political discussion?  It should be.  There are over fifty-six […]

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Chronic Sorrow in parenting a child with a disability

‘Chronic sorrow’ is the term used to describe the chronic hidden sorrow that parents of a child with a disability live with on a day-to-day basis. Simon Olshansky, a counselor to parents of handicapped children, coined the term in 1962.[1] Parents often do not recognize this sorrow, nor do their friends, relatives, or the professionals supporting them. Chronic sorrow does […]

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