22q11 deletion syndrome, mother, raising a child with a disability
‘Chronic sorrow’ is the term used to describe the chronic hidden sorrow that parents of a child with a disability live with on a day-to-day basis. Simon Olshansky, a counselor to parents of handicapped children, coined the term in 1962.[1] Parents often do not recognize this sorrow, nor do their friends, relatives, or the professionals supporting them. Chronic sorrow does […]
» Read more
Camps are good for children, but parents also need camp. Parents of children with 22q.11 Deletion need…meditation camp to help deal with the stresses in raising their child. Mike, my son is grown now, but I remember the relentless stress. Chronic stress is dangerous and can result in a multitude of health problems. There were long hospital days, unexplained fevers, difficulty breathing, failure to thrive, heart problems, seizures, […]
» Read moreI have another book coming out entitled, Chance at Life. It’s novel about the regulars in a dialysis unit and what life is like for people living on borrowed time as they peer over the abyss. Advisors say I need a blog. So I joined Substack. It’s kind of scary because I’m not accustomed to putting my thoughts out there […]
» Read more
Hanging up my stethoscope feels like losing a limb. I’ve been a nurse, a nurse practitioner, and a nursing instructor for all of my adult life. Over the years I have listened to thousands of patient’s stories, listened to their hearts, their blood vessels, their bowels, and their lungs. I have touched patients, held their hands, hugged them, made them […]
» Read moreCrisis This Covid-19 crisis moment will go down in history books. Life on this earth is changing before our eyes. An invisible virus brought our world to a standstill. We hide from the virus as it hides from us. In Chinese, the word for crisis consists of 2 characters. The first character means danger, the second character means opportunity. This time […]
» Read more