22q11 deletion syndrome, mother, raising a child with a disability
“Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. It turns problems into gifts, failures into successes, the unexpected into perfect timing, and mistakes […]
» Read more‘Chronic sorrow’ is the term used to describe the chronic hidden sorrow that parents of a child with a disability live with on a day-to-day basis. Simon Olshansky, a counselor to parents of handicapped children, coined the term in 1962.[1] Parents often do not recognize this sorrow, nor do their friends, relatives, or the professionals supporting them. Chronic sorrow does […]
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Camps are good for children, but parents also need camp. Parents of children with 22q.11 Deletion need…meditation camp to help deal with the stresses in raising their child. Mike, my son is grown now, but I remember the relentless stress. Chronic stress is dangerous and can result in a multitude of health problems. There were long hospital days, unexplained fevers, difficulty breathing, failure to thrive, heart problems, seizures, […]
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