Setting expectations for children with 22q.11

As parents we often struggled with what were appropriate expectations for our son with 22q.11 Deletion Syndrome. Expectations are a double-edged sword. The problem with expectations for a child with a disability, is that it is difficult to find the right balance between motivating your child to achieve the best they can, and setting too high expectations that can lead […]

» Read more

Tell Grey’s Anatomy- No More 22q.11 Misinformation!

One of the problems with having a child with 22q.11 Deletion syndrome (a.k.a DiGeorge Syndrome, or Velocardiofacial syndrome) is that even though it is considered to be as common as Down syndrome, very few people have heard of it. This includes the professionals who encounter these individuals on a daily basis in their professional lives: doctors, nurses, special education teachers, […]

» Read more
1 2