22q11 deletion syndrome, mother, raising a child with a disability
Sometimes parents of disabled children are too busy caring for their children to pay attention to politics. However, politics matters for the future well-being of our children. Will the person we elect protect the rights of the weakest and most vulnerable among us? Are the needs of the disabled for medical care, food, and housing part of the political discussion? It should be. There are over fifty-six […]
» Read more“Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. It turns problems into gifts, failures into successes, the unexpected into perfect timing, and mistakes […]
» Read more‘Chronic sorrow’ is the term used to describe the chronic hidden sorrow that parents of a child with a disability live with on a day-to-day basis. Simon Olshansky, a counselor to parents of handicapped children, coined the term in 1962.[1] Parents often do not recognize this sorrow, nor do their friends, relatives, or the professionals supporting them. Chronic sorrow does […]
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