22q11 deletion syndrome, mother, raising a child with a disability
“Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. It turns problems into gifts, failures into successes, the unexpected into perfect timing, and mistakes […]
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Camps are good for children, but parents also need camp. Parents of children with 22q.11 Deletion need…meditation camp to help deal with the stresses in raising their child. Mike, my son is grown now, but I remember the relentless stress. Chronic stress is dangerous and can result in a multitude of health problems. There were long hospital days, unexplained fevers, difficulty breathing, failure to thrive, heart problems, seizures, […]
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As parents we often struggled with what were appropriate expectations for our son with 22q.11 Deletion Syndrome. Expectations are a double-edged sword. The problem with expectations for a child with a disability, is that it is difficult to find the right balance between motivating your child to achieve the best they can, and setting too high expectations that can lead […]
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