Guarantees for parents of children with 22q.11 Deletion Syndrome

There are always unknowns in your family’s future as is true in every family’s future, but there are a few guarantees.

You will love your child more than you ever believed was possible. Love for your child will change who you are and how you behave in the world. Even if you start out shy and retiring, you will learn to fight armies for your child. You will grieve and suffer. That is OK. It is part of the package of living life on this earth. The grieving and the suffering prepare your heart like spring rains soften the soil for the seeds of new life. You will grow in love and compassion. You will have many questions. Your questions and seeking will spur research that will help other children and families with the deletion. You will find some answers to your questions and help others find answers to their questions. Your child’s other siblings will learn compassion and acceptance. You will meet amazing people full of compassion and wisdom who will help you on your journey. You will see people with disabilities in an entirely different light.You will see better below the surface of things.Life will continue and it will be rich and rewarding.